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Our people

The EPDA is managed by a number of freelance professionals and two part-time employees with many years of relevant experience, supporting an elected board and their advisers. If you would like to get in touch with the EPDA, please email info@epda.eu.com.

Board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became Board Member of the Norwegian Parkinson's Disease Association in 1995 and president in 2001, a position he still holds.

Born in Norway, Knut-Johan graduated with a law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2009 and has served as a Board member since 2005.

From 1996 to 2002 she was President of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a Board Member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company, Arla Foods, until her retirement in 2010.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an advisor commencing January 2019.

Val was elected as an EPDA Board Member in 2017.

She has worked as a director with Parkinson’s UK since 2007. Val’s career has focused on improving health and tackling inequalities, and she has held a range of roles in healthcare practice, management, research, journalism and policy.

Val has a background in nursing and public health, and a Master’s degree in Gerontology.

Veronica was elected as an EPDA Board Member in 2017.

She was elected as president of the Malta Parkinson's Disease Association in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected as an EPDA Board Member in 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Paula was appointed as an EPDA Board Observer in 2018.

She has been CEO of the Parkinson's Association of Ireland since 2014.

Paula has worked in the healthcare field since 2004, working with providing support services for people living with HIV and AIDS up until 2014.

Observers are selected by the EPDA Selection Committee for a 12-month period, and it is anticipated that Paula will stand for election as a full Board Member in the 2019 General Assembly.

Executive Board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became board Member of the Norwegian Parkinson's Disease Association in 1995 and President in 2001, a position he held until 2016.

Born in Norway, Knut-Johan graduated with a Law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2005.

From 1996 to 2002 she was president of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a board member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company Arla Foods until her retirement in 2010.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an adviser commencing January 2019.

Russell was appointed in July 2018, to take up his position as Secretary General in January 2019.

He is currently CEO of the Brussels office of Grayling, a global PA-GR consultancy firm, and in 2015 he became Chairman of PA for Europe.

Russell has worked within EU affairs since 1998; he therefore has a vast experience in lobbying and advocacy.

Team

Dominic began his employed position as EPDA Operations Director in January 2019. Prior to this, he began freelancing for the EPDA in 2000, although he has worked much more consistently with the organisation since 2012.

Besides his work with the EPDA, Dominic has more than 16 years' broad UK-based journalism experience. His previous clients have ranged from well-known consumer publishing houses to a host of trade and customer publishing companies.

Francesco began his employed position as Information and Website Manager in November 2018. Prior to this, he began freelancing for the EPDA in 2013, working on different roles.

Francesco has a background in political science, communication and public health. His EPDA responsibilities include information and communication, projects support and website management.

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