Real Life Real PD Survey
Welcome
The survey is now closed.
Final report to be published in the European Journal of Neurology July 2008
Welcome to the Real Life, Real PD survey - a patient survey conducted across EPDA member countries and supported by pharmaceutical company, GlaxoSmithKline, focusing on the realities of living with Parkinson’s disease (PD) both ‘day and night’.
The survey focused upon questions surrounding difficulties with daily activities such as eating and dressing, mood and possible impact on relationships plus sleep disturbances and emotional well-being. It is hoped that the results of the survey will highlight the need for better control of PD symptoms over a 24-hour period and some of the less widely addressed aspects of living with the condition.
For more information regarding the survey, please contact
info@epda.eu.com
Real Life Real PD Video
Although therapies for Parkinson’s have been available for many years, the Real Life Real PD survey highlights the need for treatments that improve symptoms during the day and at night.
The interim pan-European survey results were announced during the XV11th World Congress on Parkinson’s Disease and Related Disorders Congress, held in Amsterdam and this video was developed to illustrate some of the real life difficulties in living with Parkinson’s. It features Terry Kavanagh and his wife Jean, who have lived with the disease for over 20 years.