The EPDA achieves its success through combining the strengths and experiences of its partners. It has provided an important forum to work in collaboration with European organisations, both patient and neurological, the European Commission, the World Health Organisation, the World Federation of Neurology, and the pharmaceutical industry. This partnership has enabled the development of research projects into quality of life issues, and conferences for multidisciplinary teams and people with Parkinson's of any age.
The EPDA depends on the support of external organisations and companies for funding.
| Diamond |
Platinum |
Gold |
Silver |
Bronze |
Partnership funding (core funds) |
3 years in kind and/or cash valued at 30,000 Euro or more a year |
Commitment in kind and/or cash valued at 30,000 Euro or more a year |
Commitment in kind and/or cash valued between 20,000 and 30,000 Euro a year |
Commitment in kind and/or cash valued between 10,000 and 20,000 Euro a year |
Commitment in kind and/or cash valued between 5,000 and 10,000 Euro a year |
This non-restricted funding is supplied on an annual basis by external organisations and companies to enable the EPDA to maintain the organisation including: Auditors, General Assembly, Management, Board meetings, Administration, Website & Publications |
In addition to providing non-restricted core funding, there are opportunities for companies to partner with the EPDA on individual projects and conferences (as set out below) which are of mutual benefit to all concerned.
Publications for production in 2008 |
Date |
Funding confirmed |
Funding required for completion |
EPDA Plus
http://www.epda.eu.com/epdaPlus
Opportunities to provide editorials and advertising
http://www.epda.eu.com/PDInfo/Publications/EPDA/epdaPlus/editorial_advertisingContactForm.asp
Partners
Solvay Pharmaceuticals |
April, August, December |
5,000 € |
25,000 € |
EPNN Journal
http://epda.eu.com/epnn/epnnJournal
Opportunities to provide editorials and advertising
http://www.epda.eu.com/PDInfo/Publications/EPDA/advertisingRates.asp
Partners
Britannia Pharmaceuticals & GE Healthcare |
April, August, December |
30,000 € |
- |
Projects in 2008 |
Date |
Funding confirmed |
Funding required for completion |
PD Nurse Specialists
The aim of this project is the uniform development of PDNS practice and to establish an international framework for guiding the development of minimal standards and core competencies in specialty-focused nursing practice in partnership with ICN, Working Group on PD and
the EPDA.
Partners
Britannia, Lundbeck, Novartis, Orion Pharma & Solvay Pharmaceuticals |
Start Date
June 2006
Completion Date
December 2008 |
54,373 € |
15,616 € |
Parkinson's Decision Aid:
Focusing on the importance of communication and agreement between the patient and their physician by working with the member organisations, EPDA medical advisory board members and the pharmaceutical industry to compile a simple guide to aid communication and concordance.
Partners
GlaxoSmithKline, Medtronic Foundation, Merck Serono, Novartis, Orion, Solvay Pharmaceuticals
The Cure Parkinson's Trust |
Start Date
July 2006
Launch Date
10 April 2008 |
113,050 € |
18,000 € |
Real Life Real PD
A patient survey conducted across EPDA member countries and supported by pharmaceutical company, GlaxoSmithKline, focusing on the realities of living with Parkinsons disease (PD) both day and night.
Partners
GlaxoSmithKline |
Start Date
October 2007
Completion Date
August 2008 |
n/a |
n/a |
Parkinson’s Awareness Campaign
Aims
This campaign will help to raise awareness about the impact that Parkinson's has on daily life and improve the understanding and knowledge relevant for all stages of the disease.
- Visualise challenges, for PWPD
- Raise awareness, especially its consequences
- Influence Decision Makers
- Raise funds for resources, management and research projects
Objective
- "Targeting the general public's emotions by visualising the severity of the disease impact on daily life
- Providing hard facts on PD's impact including Cost of treatment, medication - when to begin and different treatment strategies
Target Groups
- Decision makers including national and European politicians i.e. European Commission
- Scientists and Researchers
- Healthcare professionals
- People with PD and family members
- General public
Components
- Short 30 - 60 second film showing everyday life situations that are taken for granted with the intention of the viewer identifying with the person with PD raising awareness of what it is like to live with PD and how many people are impacted i.e. shopping and queuing in a supermarket and crossing a busy intersection (format suitable for TV-broadcasting and distribution via net)
- Awareness Kit including case studies, handwritten stories by people with PD, Executive Summary, Literature references, health economic and epidemiological data, questions and answers
- Website development
Partners
GlaxoSmithKline, Merck Serono, Solvay Pharmaceuticals |
Start Date
January 2008 |
114,000 € |
ongoing |
Occupational therapy practice throughout Europe
This is a pilot study being conducted to collect the evidence of OT awareness among PD patients in different stages and OT practice as perceived by PD patients themselves.
Partners
KRKA d.d, Lek d.d, Solvay Pharmaceuticals |
Start Date
March 2008
Completion Date
December 2008 |
40,000 € |
10,000 € |
Understanding Cognition in Parkinson's disease - A patient/carer survey
The EPDA will be working with Merck Serono International in 2008 on this survey that will increase understanding of the prevalence and importance of cognitive impairment in Parkinson's disease from the patient's and carer's point of view; and increase general awareness around cognition and Parkinson's.
Partners
Merck Serono International |
Start Date
October 2008
Completion Date
2009 |
12,000 € |
18,000 € |
Ongoing developments throughout 2008 & 2009 |
Date |
Funding confirmed |
Funding required for completion |
Rewrite Tomorrow
This website seeks to bridge the current patient information gap for Parkinson's management. With the support of our experts, we are gathering and reviewing important information that will enable better management on a daily basis and enhance independence.
Partners
Medtronic Europe |
Start Date
January 2006 |
13,400 € |
ongoing |
Coping Strategies – Tips and Tricks
Available via website and DVD
A new website and DVD are in the process of being developed to share
coping strategies or Tips & Tricks that have been created by people with
PD to assist them in their daily lives. The site will contain coping
strategies on several aspects of living with PD including speech and
swallowing, occupational therapy etc.
Data has been collected from Ireland, Luxembourg, Slovenia, Japan, South
Africa and Italy.
Partners
Lundbeck, Medtronic, Novartis, Orion Pharma, Schwarz Pharma, Solvay Pharmaceuticals & Teva |
Start Date
April 2005
Launch Date
February 2008 |
15,788 € |
10,000 € |
Conferences and Events taking place in 2008 |
Date |
Funding confirmed |
Funding required for completion |
World Parkinson's Disease Day
10 April, Cairo, Egypt
Partners
Bayer Schering, Britannia, GE Healthcare, Medtronic Mediterranean, Norgine, Orion, Solvay, UCB
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EPDA 7th euroYapmeet Conference, Croatia
4 - 6 October, Zagreb, Croatia
The EPDA will be holding their annual 1.50 day conference, prior to their General
Assembly.
For the first time, the EPDA is offering the opportunity for companies to hold
their own symposia alongside the conference.
Partners
GlaxoSmithKline, Medtronic, Merck Serono |
October |
22,000 € |
70,500 € |
Eastern European Road Shows
This is an ongoing initiative that began in 2007 with a partnership between Hungary and Sweden.
2008 location: Poland
Partners
tbc |
September |
0 € |
30,000 € |
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