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Our people

The EPDA is managed by a number of freelance professionals with many years of relevant experience, supporting an elected board and their advisers. If you would like to get in touch with the EPDA, please email info@epda.eu.com.

Elected board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became board member of the Norwegian Parkinson's Disease Association in 1995 and president in 2001, a position he held until 2016.

Born in Norway, Knut-Johan graduated with a law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan is married and has three children. Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2005.

From 1996 to 2002 she was president of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a board member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company Arla Foods until her retirement in 2010.

Mariella was elected as an EPDA Board Member in 2014, having formally been Treasurer since 2009 and Secretary since 2004. 

She worked with the Parkinson Luxembourg Association from 1998 where she was Vice-President from 2007 until 2014. From 2000 she has been president of the Association of Physiotherapists in Parkinson's Disease Europe (APPDE).

Born in Argentina, Mariella moved to the UK in the 1981, graduating as a physiotherapist and working as a neuro-physiotherapist at the London National Hospital for Neurology and Neurosurgery. She moved to Luxembourg in 1996 where she has her own physiotherapy practice.

Ami was elected as an EPDA Board Member in 2009. 

Retired due to ill health, January 2016

Ami was diagnosed with Parkinson's in 2000 and joined the Israel Parkinson’s Association (IPA) in 2004, being elected on to its board shortly after. Since then he has been an active force within the organisation and was elected its chairman of the control and ethics committee in 2011.

Born in Israel in 1944, Ami is married and has three children and eight grandchildren.

Panayiotis (Panos) was elected an EPDA Board Member in 2014.

Panos is the co-founder of Greek Parkinson’s organisation EPIKOUROS-kinesis, and has been its president since 2008.

Born in Greece in 1970, Panos lives in Athens where he is a neurologist at the 251 Hellenic Air Force General Hospital, and is in charge of the Movement Disorders outpatient clinic. His subspecialty is deep brain stimulation.

Executive Board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became board member of the Norwegian Parkinson's Disease Association in 1995 and president in 2001, a position he held until 2016.

Born in Norway, Knut-Johan graduated with a law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan is married and has three children. Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2005.

From 1996 to 2002 she was president of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a board member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company Arla Foods until her retirement in 2010.

Lizzie has always lived in the UK, and has worked with the EPDA since it was formed in June 1992.

In November 2001 she was appointed to manage the organisation as well as develop its projects, activities, promotion and fundraising.

In 2012, she retired from her role as Secretary General to become an Executive Board Member and to oversee the EPDA’s continued development. Her EPDA responsibilities include managing the EPDA’s:

  • work programme
  • fundraising
  • communications
  • finances
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