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Our people

The EPDA is managed by a number of freelance professionals with many years of relevant experience, supporting an elected board and their advisers. If you would like to get in touch with the EPDA, please email info@epda.eu.com.

Elected board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became Board Member of the Norwegian Parkinson's Disease Association in 1995 and president in 2001, a position he still holds.

Born in Norway, Knut-Johan graduated with a law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan is married and has three children. Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2009 and has served as a Board member since 2005.

From 1996 to 2002 she was President of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a Board Member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company, Arla Foods, until her retirement in 2010.

Veronica was elected as an EPDA Board Member in 2017.

She was elected as president of the Malta Parkinson's Disease Association in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK with her husband and two young children. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected as an EPDA Board Member in 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is married and has one daughter. He is also a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Val was elected as an EPDA Board Member in 2017.

She has worked as a director with Parkinson’s UK since 2007. Val’s career has focused on improving health and tackling inequalities, and she has held a range of roles in healthcare practice, management, research, journalism and policy.

Val has a background in nursing and public health, and a Master’s degree in Gerontology.

Executive Board

Knut-Johan was elected EPDA President in 2009 and has served as a Board member since 2005.

He became board Member of the Norwegian Parkinson's Disease Association in 1995 and President in 2001, a position he held until 2016.

Born in Norway, Knut-Johan graduated with a Law degree from the University of Oslo, Norway, in 1976 and is now senior partner of the law firm BergensAdvokatene AS.

Knut-Johan is married and has three children. Knut-Johan has spent many years serving on the board of a number of Norwegian and international disabled organisations.

Susanna was elected EPDA Vice-President in 2005.

From 1996 to 2002 she was president of the Swedish Parkinson's Disease Association (SPA) and president of the Parkinson Foundation from 2003 - 2015. From 2001 - 2008 Susanna was a board member of the Arvid Carlson Foundation.

Susanna was born in Romania but has lived in Sweden since 1962, where she graduated as a BSc in organic chemistry at the University of Stockholm. She worked for many years as an information specialist at dairy company Arla Foods until her retirement in 2010.

Lizzie worked with the EPDA in a voluntary capacity from 1992 to 2001, when she was appointed as a freelancer to develop the organisation and its work programme. She was co-opted onto the EPDA Board in 2012.

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