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Governance

In this section, you can learn more about how the EPDA is governed, funded and much more. The EPDA is a registered AISBL in Belgium and a charity registered in England and Wales (1163211).

Our Board

You can meet the members of the board here.

Board responsibilities

All elected officers are volunteers and their positions are honorary. Together, they have a joint responsibility:     

  • to the EPDA member organisations for the management of the EPDA 
  • to continue to promote and enhance the ethos of the EPDA.

The President

The EPDA President must have been an existing board member for at least three years. He/she is responsible for:

  • enhancing and promoting the growth of the EPDA and its work programme
  • ensuring the EPDA’s strategic direction and work programme are agreed democratically
  • ensuring the EPDA's members are fully represented and able to participate in the organisation’s work programme

The Vice-President

The EPDA Vice-President must have been an existing board member for at least three years. He/she is responsible for: 

  • deputising during the President’s absence with regards to the EPDA activities (as listed above).

What does the Board do? 

  • It represents the agreed ethos, aims and objectives of the EPDA at a global level 
  • It provides Parkinson’s expertise to a variety of organisations, including the European Medical Agency
  • It acts as ambassadors, advocating for positive, proactive dialogue and partnership between all the EPDA stakeholders to improve the lives of the 1.2 million people with Parkinson’s and their families across Europe.

Board nominations and election criteria

The EPDA is a highly respected and well-known European umbrella organisation. We are committed and energetic and, therefore, require a committed and energetic board. We welcome nominations for potential candidates from enthusiastic people who are familiar with the EPDA and have participated in our work.

Duration

Board members are elected by the General Assembly for a three-year term and may be re-elected for one further term.

Selection committee

In order to select potential EPDA Board nominees, the existing Board must appoint a selection committee that includes:

  • one elected Board member
  • one present-elected Board member if NOT standing for re-election (if all Board members are standing for re-election, the Board will select an alternative representative)
  • one other chosen by the existing Board, normally the Executive Director
  • one member organisation representative, who may or may not have Parkinson's.

The committee will search for and select nominations during the year immediately following the election of the present Board. It will then provide their written recommendation to the Board along with an evaluation of their discussions/communications with interested nominees.

The existing Board

It is the existing Board’s responsibility to:

  • confirm that the EPDA budget can support the full participation of the proposed number of Board members
  • strive for the widest possible geographic representation by its Board members
  • submit successful nominations to the General Assembly for ratification by the delegates.

Nominees must:

  • meet personally with the elected Board 
  • be enthusiastic and committed individuals who are familiar with – and have participated in – the EPDA’s work during the previous three years 
  • understand the importance of the EPDA's aims and objectives, and commit to furthering these during their term of office for the benefit of the members and those individuals that they represent
  • be either a person with Parkinson’s, carer, patient organisation representative or healthcare professional
  • must reflect the geographic spread of the EPDA
  • have been actively involved in pursuing their respective organisation’s initiatives, achievements and goals for a period of no less than five years
  • confirm that the national organisation they may represent has fully paid its EPDA membership fees in the current year and for the last five years
  • attend Board meetings as an observer (in the year of the election).

General nominees must:

  • have the ability to work and communicate well in English
  • demonstrate good communication skills with a variety of people from different cultural backgrounds
  • be a good team player and appreciate the importance of partnership and working together
  • act as an ambassador and advocate for the EPDA
  • have the willingness to accept and handle responsibility within the Board structure, if required
  • show motivation and commitment
  • have a sense of humour
  • be available to travel widely and attend EPDA meetings in person, if required
  • be willing to devote the time required to attend or participate (via conference call facilities) the EPDA meetings
  • have flexible working arrangements and be able to fit in with weekend meetings and mid-week meetings and telephone conference calls
  • have an up-to-date Curriculum Vitae
  • provide an up-to-date photograph.

Board mandate

At the 2012 General Assembly, the General Assembly voted unanimously that, in order to safeguard the continuation of the EPDA and its aims and objectives, the Board Mandate should be linked to the Board nominations and selection criteria as follows:

Board members are to be:

  • elected for a term of three years
  • with a further one term of office
  • commencing 2014.

Statutes

Belgium AISBL Statutes

The European Parkinson's Disease Association (EPDA) is a charitable organisation registered in Bruxelles (Numéro de l'association: 8727/2000, No. d'entreprise: 465299201) and governed by the Belgian law of 25 October 1919, modified by the Law of 6 December 1954.

UK Statutes

The European Parkinson's Disease Association (EPDA) is a charitable organisation registered in England and Wales (registered Charity Number 1163211). Constitution of a Charitable Incorporated Organisation with voting members other than its charity trustees. Date of constitution (last amended): 19 August 2015

 

Sources of funding

The EPDA receives on average approximately €19,000 a year from its membership fees. The only other form of funding we currently receive is from sponsorship with the treatment industry (along with a small amount from EPDA fundraising activities).

Our partners are companies and organisations of high standing and reputation, all of whom agree with the EPDA’s overall strategic direction and help support the integrity of the organisation. The EPDA has adopted the EMA Code of Practice, and partnership is established on shared interest, transparency, trust and mutual benefit.

For more information, please contact mail lizzie@epda.eu.com.

Financial and annual reports

The EPDA prides itself on being a transparent organisation. Here, our audited accounts and annual reports can be viewed as far back as 2003. 

Note: PDI (Parkinson’s Disease International Ltd) was a UK-registered company that was closed in 2011.

Download our financial and annual reports below.

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