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Being diagnosed with Parkinson’s

A Parkinson's diagnosis will undoubtedly raise many questions. Some people may feel a sense of relief that they finally have a reason for the symptoms they have been experiencing, and others may experience a sense of disbelief or shock.

What is Parkinson's and what makes you think I have it?

Every case of Parkinson’s is different and not everyone experiences the same symptoms. For example, not all people develop tremor and for some, rigidity is the major symptom. With modern medication, symptoms can be well controlled.

Parkinson’s is a progressive neurological disorder that is considered to be one of the most common neurological conditions. It’s caused by the destruction of nerve cells in a small section of the brain called the substantia nigra that produce the neurotransmitter dopamine. A similar destruction occurs naturally with ageing, but in Parkinson’s the process is much faster. Certain specific nerve cells are lost, which lead to the typical major symptoms of tremor, stiffness of muscles and slowness of movement.

Symptoms are caused by the breakdown of certain dopamine-containing nerve cells in the brain. Dopamine is one of many neurotransmitters, i.e. a substance needed for communication between nerve cells. Dopamine is produced by nerve cells seated deep in the centre of the brain. The brain is always using dopamine to control nerve signals, which in turn control the body’s movements. Dopamine, like other neurotransmitters, is constantly produced and used up (destroyed). In Parkinson's, the production of dopamine is impaired whilst its use and destruction remains. This causes a dopamine deficit, whereby the body’s movement control is impaired.

Other difficulties that are not related to movement can also occur, such as pain, sleep disturbance and depression. These are known as ‘non-motor symptoms’.

If over a period of time you notice that you have some of these symptoms, then your doctor may consider that you have Parkinson’s and will refer you to a specialist for their opinion.

See also About Parkinson's.

What causes Parkinson's and is there a cure?

The causes of Parkinson's are as yet unknown. Some poisons, mould toxins and synthetic medications, for example, can give rise to the condition. Additionally, there are some genes that can be a trigger if they become damaged. Extensive brain damage can also cause Parkinson's symptoms.

Researchers have not yet been able to find a way to cure Parkinson's or slow its progression, although this is an area of great research. However, with medication symptoms can be effectively controlled to improve your quality of life.

See also Causes.


Will I die from Parkinson's?

Parkinson’s is a life-altering, not a life-threatening illness, so you will die with it, not from it. How you die will be dependent on many other factors related to your health and will not be related to Parkinson’s alone.


Is there a test that can be carried out to confirm I have Parkinson's?

Due to the complexity of the condition there is no simple or accessible diagnostic test for Parkinson’s, such as an X-ray or blood test. A clinical diagnosis is always required, which relies on an expert’s clinical assessment.

Parkinson’s is difficult to diagnose as it can present itself in many different ways, especially in the early stages when signs and symptoms are subtle. Therefore, the use of established diagnostic tools that detect the loss of dopamine in the brain may be useful and can help to reduce misdiagnosis. DaTSCAN is one such tool that has been shown to differentiate between Essential Tremor and Parkinson’s in the majority of cases. It can identify a loss of dopamine – a chemical known to be depleted in the brain of someone with Parkinson’s - from those who have no loss.

Magnetic resonance imaging (MRI) scans are rarely used for diagnosing Parkinson’s since an MRI of a parkinsonian brain generally looks normal. But MRI can help to differentiate between Parkinson’s and other types of parkinsonism for example Multiple System Atrophy and Progressive Supranuclear Palsy.

It is therefore essential that specialist advice is made available to people as soon as the early signs and symptoms of Parkinson’s are detected so that treatment options can be explored. As each person is different it may take several visits to your doctor or specialist at regular intervals to carefully monitor any change or emergence of new symptoms before a diagnosis can be confirmed.

See also Diagnosis.

How long will it take for the Parkinson's diagnosis to be confirmed?

Sometimes it may take several examinations over a period of time before the diagnosis can be made confidently.

Waiting for a diagnosis can be an anxious time so if you do have any worries during this period talk to your doctor; he or she will be able to give you further advice and try to reassure you as much as they can.

See also Diagnosis.

Where can I find more information, either written or on the Internet?

The EPDA has a wealth of information to help you. Our site map may be helpful in navigating to find the information you seek.

There are also many other useful websites and the Internet is an invaluable tool in finding information on Parkinson’s. Search engines make it possible to find out about a particular topic of interest within seconds and, unlike other resources such as libraries, it’s available 24 hours every day of the year.

Whilst the Internet is undoubtedly an indispensable part of modern life, you need to be aware that not all information has been validated. Just because it has been ‘published’ on the Internet does not necessarily mean it’s trustworthy or reputable. If you are unsure about the information you have found, print it off and discuss with your doctor or healthcare professional involved in your care at your next visit.

Is Parkinson's hereditary? Can others in my family have a test?

Research shows that in most cases Parkinson’s is not hereditary. There have been a few cases where a family reportedly had a hereditary form of the disease, but research shows, that even in identical twin studies, something else triggers this condition.

There are likely to be several genes that predispose an individual to developing Parkinson's as well as environmental factors.

At present there is no genetic test available to determine if a person will develop the condition.

See also Genetic testing.

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